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Science Policy Committee
Committee Purpose

Coordinate and to be a voice for the perspectives of the ISBER membership and the Society on policy issues related to biological and environmental repositories.  Activities include communicating with the membership on emerging science policy issues, providing analysis of policies and regulations that may affect the biorepository community, and sharing information on emerging global policy issues related to biorepositories.  Information sharing may include collaboration with other allied individuals or groups, such as the European, Middle Eastern, and African Society for Biobanking and Biopreservation (ESBB), Public Population Project in Genomics and Society (P3G), Public Responsibility in Medicine and Research (PRIM&R) and other groups with common interests on specific policy issues or topics. 

Policy statements and projects the Committee undertakes may stem from the interests of committee members or are developed in response to requests for public comment through formal or informal rule-making or policy development processes. 
Position Statements

View statements and comments prepared by the Science Policy Committee relating to current and past issues (2011- 2017) 

Projects Undertaken

Click here to view projects undertaken by the Science Policy Committee.

Science Policy Resources and Tools

Click here for links to useful resources for ethical, legal and societal guidelines and regulations for biorepository policy development, management and research. 


Committee Membership

Committee Chair
Committee Vice-Chair
Marianna Bledsoe, MA Helen Morrin
Marianna J. Bledsoe Consulting, LLC
Cancer Society Tissue Bank, Christchurch
Silver Spring, United States Christchurch, New Zealand


Committee Members
Alison Parry-Jones
Wales Cancer Bank - Cardiff University 
Cardiff, United Kingdom
Rita Lawlor, PhD CIPP/E CIPM
ARC - NET Centre for Applied Research on Cancer
Verona, Italy

Hellen Nansumba
National Health Laboratory Services and Diagnostics
Kampala, Uganda

Catherine Kennedy
The Westmead Institute for Medical Research, University of Sydney
New South Wales, Australia

William Grizzle, MD PhD
University of Alabama at Birmingham
Birmingham, United States

Madeleine Williams, MA
Huron Consulting Group
Baltimore, United States

Tohru Masui
Keio University School of Medicine
Tokyo, Japan

Wendy Wolf, PhD
T1D Exchange
Boston, United States

Rebekah Rasooly, PhD
Bethesda, United States

Michaela Th. Mayrhofer, PhD
Graz, Austria

Kelsey Dillehay McKillip, PhD
University of Cincinnati
Cincinnati, United States

Brent Schacter,MD FRCPC
CancerCare Manitoba
Winnipeg, Canada

Caioimhe Vallely-Gilroy, BSc PGCert MSc
Merck KGaA
Darmstadt, Germany

Elizabeth Mayne
Clinical Laboratory Services
Johannesburg, South Africa

Lana Skirboll
Washington, United States

Aaron Goldenberg, PhD
Case Western Reserve University
Ohio, United States

Carol J. Weil, JD
National Cancer Institute
Maryland, United States

 Committee Advisors

Brian Clark, PhD
Novo Nordisk A/S
Måløv, Denmark

Helen Moore, PhD
Bethesda, United States

Jackie Mackenzie-Dodds
Natural History Museum
London, United Kingdom

Elena Salvaterra, JD PhD
Biomed Consulting International
Milan, Italy

Nicole Sieffert, MBA CCRC
Independent Consultant
Texas, United States



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