Links

RAND Corporation
Eiseman E, Bloom G, Brower J, et al. Case Studies of Existing Human Tissue Repositories: "Best Practices" for a Biospecimen Resource for the Genomic and Proteomic Era. RAND, 2003

Marshfield Clinic Research Foundation
The Marshfield Medical Research Foundation has posted information concerning the structure of its biobank on the Personalized Medicine Research Project website.

New England Cell Repository
New England Cell Repository, a division of New England Cryogenic Center, Inc., is a cell and tissue cryopreservation and storage company designed with the medical and research facility in mind. NECR/NECC is an AABB accredited, and FDA registered and compliant facility. This insures that vital cells and materials are received, stored, monitored, and handled to the highest standards.

The NUgene Project
A repository of human DNA samples and associated medical information

OHRP
Office for Protection from Research Risks
Issues to Consider in the Research Use of Stored Data or Tissues

NCI
NCI Cancer Diagnosis Program, Human Specimens for Research: Legal and Ethical Issues, (overview plus links to other resources such as the NCI model consent form for tissue banking and other guidance documents, federal regulations governing research with human subjects, etc.).

NHLBI
Human Tissue Repository Guidelines

NBAC
National Bioethics Advisory Commission (NBAC). Research Involving Human Biological Materials:
NBAC Publications
Ethical Issues and Policy Guidance, August 1999

NTIS National Technical Information Service

CDC
National Office of Public Health Genomics, Centers for Disease Control and Prevention, "Policy, Guidelines, Ethics,"
<http://www.cdc.gov/genomics/population/rep_policy.htm > (links to reports and publications related to genomics and public health, including articles on DNA banking for epidemiological studies).

Health and Human Services
U.S. Department of Health and Human Services, "Research Repositories, Databases, and the HIPAA Privacy Rule

ISBER
Aamodt R. "The Health Information [sic] Portability and Accountability Act of 1996 Privacy Rule." International Society for Biological and Environmental Repositories (ISBER) Newsletter, Summer 2003

ASIP
American Society for Investigative Pathology
ISBER is a Division of ASIP

AABB
American Association of Blood Banks

ALA
Association for Laboratory Automation

Ambrose Monell Cryo Collection
American Museum of Natural History

ARCTOS
Database server for Arctic, Boreal, & North Pacific specimen-based research, University of Alaska Fairbanks Museum.

BIOTA
The Biodiversity Database Manager created by Robert K. Colwell, University of Connecticut.

CBCTR
The National Cancer Institute (NCI) Cooperative Breast Cancer Tissue Resource

GBIF
The Global Biodiversity Information Facility: international organization enabling universal access to biodiversity information via the Internet.

LRIG
The Laboratory Robotics Interest Group: special interest group focused on laboratory automation.

AEBT
The Spanish Association of Tissue Banks

Medical Automation
Research Center General info Contact: Apple T. Plotnick (434) 982-1628 medicalautomation@virginia.edu.
Contact for Corporate or Conference sponsors: Dr. Robin Felder (434) 924-5151 rfelder@virginia.edu.

Molecular Tissue Bank
University of Florida

UAF Museum
University of Alaska Fairbanks Museum

ASHG
American Society of Human Genetics. Statement on informed consent for genetic research. Am J Hum Genet 59(1996):471-474

ACMG
American College of Medical Genetics Storage of Genetics Materials Committee, Statement on Storage and Use of Genetic Materials, 1995

ISBER Endorsed Events

Related Events

The Australasian Biospecimen Network (ABN)
(ABN) is a professional organization established in 2002 to provide a forum to address technical, legal / ethical, and managerial issues relevant to human biospecimen repositories. It is composed of a variety of specialists involved in tissue banking for research purposes, including several who are members of ISBER (Lisa Devereux, Heather Thorne). In addition to this, we are currently developing a 'Tissue Specimen Locator' which will allow researchers to use a web-based search page to discover what tissue is available for their studies on a national level.

Translational Genomics Research Institute (TGen)
The Translational Genomics Research Institute (TGen) is a non-profit 501(c)(3) organization focused on developing earlier diagnostic

Cryogenic Society of America
The Cryogenic Society of American (CSA) is a non-profit technical society serving all those interested in any phase of cryogenics, the art and science of achieving extremely low temperatures - almost absolute zero.
CSA is a full-time technical society and trade association concerned solely with cryogenics. CSA members work in space programs around the world in high energy physics, industry, research labs, astronomy, air separation and LNG industries, and academia.